The Giant Intracranial Aneurysm Registry

Scientific evidence on giant intracranial aneurysms so far has been scarce and it is often difficult to properly advise patients. The Giant Intracranial Aneurysm Registry is an international registry of intracranial giant aneurysms. Its main goal is to collect data on how patients with this pathology present, what kind of therapies are conducted and how the patients’ health status develops over a follow-up period of 5 years. The registry started in 2010 and is currently represented in 10 different countries. Fortunately, the registry is being supported by the neuroradiological, neurosurgical and neurological communities throughout Europe. The current status of data collection was presented at the 4th ESMINT Congress in Nice in September 2012. Thanks to the support by ESMINT we have added numerous neuroradiologic centers throughout Europe to further promote the interdisciplinarity of this project.

We invite you to join the registry. The members of the registry have the option to join or start a spin-off project based on the data bank. Data collection is fast and simple. Please find the study protocol and the data collection sheets below. The study is coordinated by the Department of Neurosurgery at the Charité in Berlin, Germany. If you would like to request further information or would like to start including patients with giant intracranial aneurysms please do not hesitate to contact the study coordination office at the Charité in Berlin, Germany (julius.dengler@charite.de).

Downloads

Basic Module [PDF - 20kB]
Follow-Up [PDF - 8kB]
Manual [PDF - 68kB]